Saturday, August 14, 2010

Well, nothing has changed. I still have one more med for the drug store to order but the new ones I have given him have made no noticable difference. Yesterday I had to cancel the speech therapy because he felt too unwell to go. Today he had a bad day - not once did the meds hold until the next dose. So he was having bad spells all day.Twice I had to give him extra meds meaning he has missed two feeding times as well. Tomorrow I will pick up the new med - substituted for the one that would not dissolve so I could give it via the feeding tube. The one that is supposed to help dry up the secretions in his mouth has made no difference so far. It has been a discouraging day. The neurologist's office is now closed for holidays for three weeks.

Please pray for the new meds to start to work better.

I think I feel like it is a two thumbs down day.