The last two days have had their ups and downs. For much of the day John has been good but on both days he had a really bad "crash" = meds not working. Yesterday it happened right after his 2pm meds and was really bad. I gave him an extra dose of the meds instead of a feeding at 2:45 and that seemed to bring him out of it. Today it was after the 6:30pm meds and even the extra dose did not seem to help. He did not start to improve until the 8:00pm meds. And he was still not good when I got him ready for bed. He wanted to tell me something but could not get the words out at all. I waited as long as I could and then had to tell him he could tell me in the morning.
He slept poorly last night needing more meds at 2am and had to be moved to the couch at 4 am - earlier than usual. He was very uncertain on his feet and almost fell trying to lay down but fortunately I had a belt around him and was uable to keep him upright. He also gets really bad hickups in the night which wakes him up and I have to sit him up in order for them to go away. This happens several times some nights.
Please pray he will sleep through tonight. We both need it.
One thumbs down
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