Friday, November 11, 2010

The last few days have seemed to follow the same pattern - John goes to sleep at 11pm - wakes again in an hour or two - is up for several hours but feeling pretty good - then sleeps until late in the morning. When he wakes he feels fairly good - eats some ice cream. But as the day goes on, the meds begin to not work as well, and by evening he is feeling poorly and I am skipping feedings and giving him extra meds instead. By bedtime is he feeling pretty awful. But he goes to sleep...... and we begin again.

So one thumbs down again.