Later last night was a disaster. John had asked for a sundae and I had given him a large dish of mint chocolate ice cream with raspberries on top. However, his mouth was bothering him a lot and he just sat there holding it while it melted. Eventually he spilled it - all over himself, his chair, the rug and the floor. The melted chocolate has stained his chair quite badly. Shortly after this, I went to give him his next set of meds and the tube blocked - and the meds shot out of the extra valve all over the wall and ceiling. It is orange - and staines. I tried to wash it off the ceiling but the surface on the ceiling came off too so I gave up - and we now have and ugly grey patch surrounded by orange dots! I was going to take him to emergency to get the tube unblocked but he said, wait until the morning because it was after eleven at night. During the night, the tube either blew open or came open but a bunch of the stomach contents spilled out in the bed. It made quite a mess - but unblocked the tube so that it has worked OK today. It still does not feel just right - sometimes it is hard to get the feed in. I am concerned that it may have worked it's way our of the stomach again.
Today was a much better day although Ernie and Helen, friends in the apartment building, came down to sing with John but he was having an "attack" just then and could not sing with them. He was disappointed.
He did one set of his voice exercises but could not get any volume today. Debbie came and visited and had supper with us. She brought Mr Bean's Vacation for us to watch.
Because of last night and this afternoon I am going to give it a one thumbs down. If I had written this blog last night I think I would have given it all ten finger and thumbs down!!!
Payer requests:
- for the feeding tube to work and not get blocked
- for Zeke to be able to fix our fan to use on the hot nights
- for John's new PDA to get here soon so he can keep all his appointments straight
- for grace and patience for me
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