Sunday, July 25, 2010

The last few days have settled into a pattern where John has a rough time in the mornings and the evenings but the afternoons are not as bad. I will be phoning our local doctor tomorrow to talk about whether to change the meds again or not. We see the neurologist in Vancouver on the 12th of August. We get to see him once every 8 months. Please pray one of these doctors will be able to come up with something to help John. The need to suck with his mouth is increasing as the meds increase and when this happens he is unable to get any speech out - the last few days have been very frustrating for him as he tries to talk. Yesterday he had one thing he badly wanted to tell me and it took 20 minutes for him to finally be able to get it out. Fortunately I got it on the first try - often I have to ask him to repeat what he has said and then we start all over.
Please pray for the side-effects from the drugs to lessen and for the doctors to have wisdom in how to help John to enjoy a better quality of life
I feel like the last few days are all one thumbs down!!