John had a restless night last night and was very uncomfortable by the time the support worker arrived at 9am this morning. It may turn out to be too late in the morning for him. But I sure enjoyed sleeping in until 8am!
The OT came today with two mattresses for John to try - a Roho mattress (cost about $4000.00 plus the cost of a hospital bed to go with it) and a Vicair which is a little less expensive. He will try each for two nights and then see if they make much difference and which one he likes best. I have found some on Craig's List for sale too but you are still looking at thousands of dollars and our extended medical will not pay at all for anything second hand.
So we still will have to work out what works best for us.
When we rented the hospital bed John is currently using I had to get some single bed, cotton sheet sets from Value Village because all I had was double bed sheets. Today the OT said not to use cotton sheets, I have to have jersey knit sheets so that they will give with the mattress. So far I have not even found anywhere that sells them except on line from the USA - there were not any at Value Village. I may eventually find some turn up there.
John had a pretty good day again today. The afternoon worker was one that had only seen him at 7am up until now and she could not get over the difference in John. I tried to explain that it all depends on whether the meds are working or not, but she was sure he had improved greatly.
He had a much better evening tonight as well - some problems with a lot of saliva but otherwise pretty good. Once again the support worker at 11pm commented on the difference in him. He went to sleep immediately tonight.
One thumbs up for today with no thumbs down PTL
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