The demo mattresses were taken back today. I was told I could rent the Roho until we got our own if I wanted - but when I asked the price I was told it was $150.00 a month per section (there are 4 sections). So I declined the offer.
On the upside, the Home Care has decided that they will train a couple of workers to give John his meds and feed via the tube. It has not been an easy thing to get into place because they kept insisting that all meds had to be in blister packs and they had to open and distribute the meds from there. All his other meds are in blister packs but not the Parkinsons ones because there are just too many pills - so they come in big bottles and I put them into 11 liittle containers for the 11 times each day. After a lot of back and forth discussion they finally decided that would be OK.
This will begin next Tuesday, and I will have from 12pm to 4pm to go out and do whatever I need, or want to do. It will give me time to have lunch with a friend, or shop in Abbotsford, or go and help out at Gateway.
I don't want it to sound like I am feeling confined or stir crazy, because I am not. We are actually quite used to the daily schedule. But just having a little more time once a week will be helpful to me - and good for John as he tends to look to me to do most things for him - even when the support workers are here.
As far as John's day went - one thumbs down.
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