I cancelled his appointment for speech therapy because he did not feel well enough to go. It is an hour trip to Surrey hospital - which is where we have to go for this.
Once again I had to give him extra meds an hour after his scheduled ones, meaning that he went without several feedings that he should have had.
Talked to the neurologist's nurse today but she said that they could not think of anything else to do for John. There is a new med in Europe called Duodopa but it has not been approved for use in Canada yet - and it will have to go through trials etc. so it will not be approved any time soon. She was not encouraging.
The good news is that I did get the Roho cushion for John and it seems to be working better than the other ones we have tried. The bed sore does not seem to be it getting much better - but it is not getting worse either.
I have to give this a two thumbs down day
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