Thursday, June 3, 2010

The day started out fairly well. John felt good. However I was only at the coffee hour held here on Thrusdays for 15 minutes when he called me to come home and as the day went on, he got worse - in fact he missed two complete feedings because he had to have extra meds at the time he should have been eating. So he ended up taking only 4 cans of Jevity rather than the 6 he is supposed to have. Well at least it is still better than the one or two he was getting before the feeding tube went in.
May have found a Roho cushion (the $550.00 kind) second hand for under $200.00.  Will go and look at it tomorrow morning and see if it is what we need. He is very uncomfortable sitting for any length of time because of the bed sore on his tailbone. He also has a rash down one arm and I do not know what is causing that!!
Tomorow afternoon we have to go to Surrey hospital for a speech evaluation for him. They hope to be able to give him some speech therapy to help him speak above a whisper and with more clarity. It will be an exhausting day for him. But very worthwhile if there is a way to help him communicate easier.
All in all I guess it was a one thumbs down kind of day.