Monday May 31, 2010

Not a bad day today. Bit of a roller coaster but John seemed  to have times that he felt OK as well as those when he felt lousy.
No returned phone call from the neurologist.
Had an important phone call today which he needed to give a "yes" or "no" to - but he could not make enough sound to do that so I had to say "he is shaking his head yes."

I have been trying to find a cushion for John's seat that would relieve the pressure on the area of his bed sore and prevent others from forming. Have tried out several but have not found one that really works well. Located one called a Roho cushion - I'm sure it would do the job -  but it costs $550.00!!
John was feeling badly at 10:30pm so I put him to bed. As I was writing this I heard a big crash - turned out he had decided he was feeling better and got up by himself but fell over. He did not hurt himself. He is supposed to call me if he wants up.  He wanted some ice cream which he is currently enjoying.
Well, I guess that last episode definitely made it a one thumbs down day.