The last few days have not been good for John - the meds are not working well - he has had a great deal of congestion and spends a good deal of his time coughing up phlegm.
I talked to the neurologist's nurse today but she had no suggestions that would help John in any way. She said she would leave the doctor a note. My experience in the past has been that means I will not hear from her again unless I call and then she will have nothing to report. Apparently the doctor only gets back to her when he has something new to suggest - which isn't often.
John's nights seem to be especially bad again- bedtime is the worst as it takes time for the meds and sleeping pills to take effect and in the meantime he lays there with the muscles contracting and relaxing and the saliva flowing out of his mouth onto a towel that is on his pillow. He says it is getting worse.
He finally goes to sleep (usually) but only for an hour or two and then he wakes up for several more hours. However, at that point he feels good - even his mouth is not as bad - so he wants to be up at that point. hat That means I have to get up too and while he gets back to sleep about 3 or 4 am - I sometimes have woken up by then and find it very hard to go back to sleep. So it makes for some very short nights for me. So now he is trying to entertain himself in bed and not get up but that does not work well for him at all.
Please pray for the meds to begin to work well again and for the neurologist to find something to help with the problems in the mouth. Pray that he will sleep through the entire night and that I will somehow be able to get the sleep that I need to stay healthy.
One thumbs down.
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