Wednesday, September 22, 2010

We had a very quiet day today. Although the last few days have not been too good, today went fairly well. John had one time that he was asking me for more meds right after I had given him his feeding ( so giving meds will not work as the protein nullifies the effectiveness of the meds) - however, he did not go into a bad attack as I feared he would and made it through to the next time for meds OK.
He is sleeping less at nights again - the sleeping pills seem to put him to sleep but only for an hour or two and then he wakes up and does not go back to sleep for hours. At home he sleeps on his side which makes the coughing and spitting up easier.
Yesterday he went to the massage therapist and did OK - although lying down on either his stomach or his back presents problems with the choking and coughing up the phlegm.
Friday is the last day for the speech therapist. We will miss the visits with her - but not the long drive there and back. The sessions have definitely helped his voice and we will have to be vigilant in keeping up with the daily exercises.

Please continue to pray for the meds to work and for the side effects to be limited.
Please pray that he will sleep through the night

A one thumbs up day.