Monday March 14, 2011

John had a really bad night last night - he was awake a lot of the night with phlegm and hiccups. It meant that he felt really bad in the morning. He slept on the couch for the morning and then asked to be put back to bed at noon. Later in the afternoon he got up and felt much better. The rest of the day has gone quite well and he had no bad times with the meds not working.
We seem to be winning a little bit. However, because he slept so much today, even with the sleeping meds, he is telling me he is not sleepy tonight.
I talked to Sharon, the Parkinson's nurse, and our neurologist is away working at VGH for the next 3 weeks. However, she says to keep on with what we are doing and let her know how it goes. I may try feeding him some of his protein drink in the middle of the night to make less feedings when he is taking the meds and see if that helps.
Last night in the middle of the night John told me the suction machine was not working. When I checked it out this morning, sure enough, it was not sucking at all. I checked everything I could and then called the company we got it from. They came and picked it up and will return it tomorrow. However it is $30.00 for the pick up and delivery (the company is in Burnaby). They called to say they could not find anything wrong with it and are returning it to me in the morning. They will put on a new filter and wand as they should be replaced every 6 months (we have had it 3 months) and that will be another $25.00. Ouch.
There was enough improvement for  today that I will give it another one thumbs up.