John slept very well on his new mattress last night and said he wasn't sore this morning - until he started to move. That is a big improvement.
He seemed to be doing not as badly throughout the day as some days, especially noticable is the lack of saliva and phlegm - only a little not even covering the bottom of the suction machine cup as compared to 400 cc in the past. He still used the suction machine a lot but there was just not as much fluids.
I decided to try and give the feedings only after every other meds to see if there is a conflict there and it would show up that way. I had to start his feed earlier and end later than usual but it actually proved to be farily easy to do. I thought it might be helping until..... 6pm the "attack" began and it was a really, really bad one. From that time on, until he went to bed, he was gasping for breath, sweating profusely - like his t-shirt was wet - not damp; and his hands were shaking uncontrollably. He didn't want me to leave him because he was so afraid he would not get his breath, but it is so hard to just sit there and watch him suffer.
Once I got his sleeping meds into him, he suddenly pronounced that he was feeling better.
Now I have no idea at all what is going on or how to help it.
I will call the neurologist's office tomorrow and give them the latest data and see what they think.
The new hospital bed arrived today. Very similar to the rented one we did have, but much quieter when you put it up and down.
Two thumbs down because of this evening.
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