Sunday, March 20, 2011

John had a good night until 5am. From then on he did not do as well. For the first time I can remember, he was needing his meds (meaning he was already having difficulty breathing, sweating etc.) at 8am He was awake and very uncomfortable by the time the worker arrived at 9am. The day did not get any better.
When I got home from Church the worker had been trying to change his t-shirt and wipe off the sweat but he was so rigid that she was having great difficulty with him. If I had not arrived back when I did, I think he could have ended up on the floor.
I have had to change his clothes three more times today and I am trying to keep the pillows, chair etc covered in towels so I can easily change them as well.
The worker tonight was so concerned that she is calling in a report to the health care nurse.
I have called Sharon, the nurse clinician, and left a message for her to call me tomorrow.
I have also left a message for the OT as she has ordered John's chair to be raised up so that the new lift we have to get will fit under it. Dave, the maintenance man from Gateway, came and made the platform yesterday. What a blessing he has been to us.

Two thumbs down today