Sunday March 6, 2011

John slept well for most of the night but woke me at 5am because his feet were sore and then went back to sleep - but I could not sleep any more so it has been a long day.
John was really good this morning and early afternoon. He was fine while I was at church and good enough that in the early afternoon I was able to slip out for a one hour meeting for a church committee I am on and he was fine.
 I was beginning to hope the new meds were going to work today. Then at 3:30 he said he felt an "attack" coming on. From then on it was downhill - especially with the difficulty getting his breath, rigidity, and sweating. I had to change his t shirt several times because it was soaking wet from the sweat. I had to use the lift to sit him back up in his chair several times. The only improvement was there was not a lot of the congestion and he only ran the suction machine once in awhile. That was good because Margie came over and we all watched Les Miserables - the 25th Anniversay performance. And the suction machine is very loud so it was not interfering with the music!!
I will call the neurologist tomorrow and see what his nurse says.
I will call and see if the bed and mattess will soon be here.
And I will call the OT and see about getting the loan of a reclining wheel chair to see if it makes a difference.
So looks like I will have a busy day!!!
I will give it a one thumbs up for the first half of the day and one thumbs down for the second half.