Thursday, March 10 2011

John slept well on his new mattress - although the last few days he has been waking up earlier than usual - but not because he was uncomfortable. Maybe he is just getting a better sleep.
I sent an e-mail to Sharon, the nurse clinician, outlining exactly what had been happening the last few days and asked her to call me, which she did.
Apparently the doctor is in Montreal at a conference so she could not talk to him. She suggested that when he gets bad to give him one more Sinemet pill. I tried it this afternoon and it did seem to help although John has had a rough day. She thought it was a good idea to stagger the feeding as I did yesterday so I will continue with that. It has it's benefits but one of the negatives is that I have to start earlier and the last one is 11:45pm so I have to stay up a little longer. However, John can just sleep through it.
The doctor gets back to the office on Monday so we have to wait until then to get his input.
My frustration level with this whole process is getting very high. It is just so hard to watch John suffer so much and feel like there is nothing I can do and we are always waiting for the doctor to be around to make some changes in a few days. But nothing ever really changes.
Tonight it was my night for respite. Margie and another friend, Pat from Bowen Island, came and picked me up and took me out for a steak dinner. We had a lovely time and deliious dinner.
John wasn't too bad while I was gone but got bad just before bedtime and asked to be put to bed early. However, he has yet to settle down ...ooops.... there goes his bell again.
One thumbs down for today (except for dinner!!!)