I am sorry to report that this was the worst day yet. John did not feel as well at 7am - he also had a male support worker who was not as gentle and kind as the ladies are. So the morning ritual was more trying than usual. The day went downhill from there.
The meds did not work virutally at all during the whole day and John was in really bad condition. So once again the 11am support worker could do little to help him. The evening worker had a difficult time getting him ready and into bed because he just could not do anything to help himself. We finally got him into bed and settled for the night - and then the valve for the feeding tube malfunctioned and the stomach contents made a big mess in the bed so we had to change everything again and then settle him down again.
On the bright side, a wheel chair was loaned to us today from the Lion's Club and we can keep it as long as we need it. The lift arrived in the morning - but we have to rent it monthly!
It was so hard to watch the suffering John was going through today and not be able to do anything to help him.
He seems to have gone off to sleep now and I really pray he will sleep through until the morning as I am sure his poor body really needs a rest.
At least two thumbs down for today.
s
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