I guess it would have been too much to expect two good days in a row. Today was not good. The early morning session went OK but the 11am was a repeat of several other days whenJohn was just not good enough to get the stuff done then that we had hoped for - ie shower, hair washed, shaved, dressed, moved into his chair etc. Today he got his eyes washed and tucked back into bed.
That meant, of course, that I had to get him up when he felt ready. Used the lift and it worked quite well.
Tonight John was really having a rough time especially with the rigidity - which means sitting in his chair.
I was boosting him back into a sitting postion about every 10 to 15 minutes. I did it with the lift and the good news is that it does not strain my back and it works great. The downside is that it is at least a 5 minute proceedure each time.
However, by 9:30 he was practically out straight and in great distress. He said he could not wait for the support worker to get here and he needed me to put him to bed right then. He was feeling so weak that he had great trouble standing in the harness long enough for me to get him to the bedroom. Then transferring him to the bed was difficult with only me here and I still ended up having to just physically pull him into bed - an action my back objected to strenuously.
Tomorrow a hospital bed will be arriving for John. Means I will be sleeping in the spare room, but will make looking after John and getting him in and out of bed much easier.
So, a one thumbs down day today
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