John had a poor start this morning. Did not feel very well until the afternoon but did well for most of the rest of the day. He started to go downhill about 9:30 pm again but not nearly as bad as last night.
Tomorrow we have the Support Workers' supervisor coming to talk to us - and the home care nurse coming to see John for the first time. She will be doing the dressing for his feeding tube and any other medical things that need doing as the home care workers cannot do that. They cannot even put a cream on him if it is a prescription.
John's Christmas present is also arriving although he does not know it yet. He has completely filled up the PVR with recordings so I got him an extender box so he can record more "stuff". Shaw is going to install it tomorrow.
My back is feeling much better today - thanks for the prayers.
not sure how to rate today
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