Jihn slept well last night but had a very bad time this morning. The meds were just not holding and the 11am worker ended up doing not much more than put him back to bed. I sat and read to him for a kong time. The Occupational Therapist was due to come at 1:30 pm so he decided to get up and be in his chair by then. He actually began to feel a little better before she arrived although he was not feeling well enough to talk to her very much. She came to decide if we needed a different chair for him to sit in so he won't slide out when he goes rigid. She decided to try and adapt the chair he has by putting pillows under his legs and basically all around him - to hold him in. It seemed to work OK tonight. So maybe that will be all he needs. However, she feels he needs a better mattress for his hospital bed. We are currently renting the one we have but to get the kind of mattress he needs to prevent bed sores etc. we would have to buy it. Over $3,000.00 just for the mattress without the bed. I have to check with our extended medical and see what they will cover. I hope it is a lot!!
Just as the OT left, the theological student from our church arrived and visited John and gave him communion. John seemed to feel a little better after that and the meds seemed to hold well until just before bedtime. However, he got to bed, and went to sleep quite quickly tonight so it was not as bad as some nights.
But overall, one thumbs down for the day.
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