Got up at 6:30am ready for the support worker to arrive at 7am. Nobody showed up. They arrived at 8am instead but the office had not told me they had changed the time. Apparently it was just for today because when I phoned they said it would be at 7am for the rest of the week.
When the worker arrived it was a man. We have had him once before. He is really rough and today he even tore the skin on John's right arm in handling him so roughly (his skin is very fragile). So I am going to ask not to have him again.
John has felt on the verge of having a bad attack all day but it never really materialized. I told the 11am worker that his hair had not been washed in weeks and he really needed it. So she improvized and managed to give it a good wash. That was a real gain.
Most of the later afternoon and evening he has been quite rigid even if the synptoms were not all there. When he is rigid he slides out of his chair so it meant that every half hour i was getting him up and into it again. It is much easier with the lift although it is quite a process. The lift and the hospital bed are the two things that are really helping me the most when I am on my own to look after John.
Ted and Sabryna called me on Skype today. They have a camera with their computer so I was able to see my new greanddaughter, Shyla, with it. She is a beauty.
Hard to rate today.
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