Wednesday, December 22, 2010

John had a good night last night but then came the morning... He did not feel well at all during the morning. When the worker came at 11am he was feeling too poorly to even have his teeth brushed. We ended up just putting him back to bed. He stayed there for about an hour and then decided he wanted to get up and watch TV to distract himself. Once he got into his chair he did seem a little better.
The supervisor for the support workers came by today and we talked about having the first shift come in at 8am rather than 7am. She is going to see what she can work out.
In the early afternoon the Rev Ed Hird came to visit. He was our pastor at St Simons in North Vancouver which was the church John served as honourary assistant until he got too ill. Ed gave us communion and showed us pictures of the Carol Service on his I-Phone.
Shortly after he left, Margie arrived for us to bake Christmas goodies. John seemed to pretty good when she was here. He was looking forward to Handel's Messiah that would come on at 9pm. Unfortuhalf nately he had a bad spell just as it began. He was so rigid he could not sit upright in his chair. So I moved him to the sofa where he could lay down. He was in misery and his muscles were going into spasm all down his left leg - which is a new thing. I gave him his meds at 9:30 as usual and by 10pm, when the support worker arrived, he was much better.
The biggest thing today was that the neurologist actually called me!! He has cut down on one of John's pills and may make some other changes after the holidays. He seemed quite concerned to hear how much John has failed in the past few weeks. He also asked me to keep a written record of the times the meds do not seem to be working. So I started that tonight.
John did enjoy the last half of the Messiah and listened to it in bed until it was over.
But I have to give today a one thumbs down.