Thursday, December 23, 2010

Today was not a good day at all. John only had a few hours in the afternoon that he felt fairly good - fortunately that was during the time Gus came to stay with him while I ran out to London Drugs to get refills on some of his meds.
Tonight was terrible. By 10pm, when the support worker arrived,  he was in really rough shape - and was choking and coughing up a lot of phlegm so that he felt like he was going to choke and not be able to breath. He had a REALLY BAD time at bedtime. The support worker was so concerned with his condition that she did not want to leave me alone with him but of course she had to go when her shift was over. I had to stay by his bedside until about 20 after 11 when he finally went to sleep (I gave him two sleeping pills at 10:45pm)
The OT is coming to see us again on the 29th - she thinks we will need to buy a reclining wheel chair for John because he keeps sliding out of the chair he has now when his muscles go rigid - and while the lift works great when I can get him into it, it is almost impossible to get his hooked up to it when he is lying half way on to the floor!!! His legs are out so straight I can"t even get it near him to fasten him in.
I baked Christmas cookies today so add that to the struggle tonight and you will understand when I say I am VERY tired. 

Two thumbs down.