John needed attention at 5am this morning which was OK - he seemed wide awake. But when the support worker arrived at 7am we could not wake him up. Finally he wiggled a hand and kind of opened one eye. She washed and changed him and we moved him to the living room sofa in the wheel chair. At 10:30am he woke up and said, how did I get here? He has no memory of the early morning stuff at all. He really was sleeping.
The 11am session went very well for the first time. He was acutally able to get his hair washed and everything. Maybe beause he was fresh from sleep.
Dave and Manuel came down from Gateway and removed our bed ready for the hospital bed which arrived at 10:30am
The early afternoon went well too and I even lay down and had several naps during the 45 minutes between med and feedings.
A man came to talk over some business with us at 3pm and John was just starting to feel poorly so had a hard time taking part in the conversation. He began to get rigid and slide out of his chair, so the kind man helped me lift him back up and into the chair 3 times during his vist. With two people it is easier to haul him in manually than to use the lift.
Things went downhill from there. Once our visitor had left, I did have to use the lift to get him sitting upright - about every 15 minutes most of the evening.
When the evening support worker arrived, we put John to bed but he was in bad shape by then. It was difficult to get him washed and changed and he seemed quite upset although he could not talk to us.
I don't think he is very happy with the new bed.
I have spent from 10:45 until now (midnight) just trying to get him setteld down as he was extremely agitated but could not really tell me what to do to help him. I finally gave him a second sleeping pill and he has gone to sleep.
He has developed pressure sores on right his ankle and foot so we told him he has to lay in bed on the opposite side to what he usually does and I don't think he likes that either. But he didn't want a pillow under his foot so this seemed the best solution.
Please pray that he will get used to the bed and sleep well.
Please pray for healing for my back which is quite sore.
I'm going to give it a two thumbs down because tonight was soooooo bad.
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